Thanks to all who left comments on my last post. Your tips and experiences are really helpful.
I nearly lost it with the doctor's office on Friday because I couldn't get a call back. And when I finally talked to a real person, it was a nurse who could answer none of my questions. We will definitely be changing doctors. In the meantime, I spent a good part of my day tracking down a pediatric endocrinologist. Even in a big city, they are not easy to come by, most of them wouldn't make an appointment without a referral, and the earliest appointments are months away. But eventually, I found a specialist, made an appointment for late October--the earliest I could get in with anybody, and directed my doctor to make the referral to specialist and send over PS's records. It was all far more difficult than it needed to be, if the primary care physician would have done his freaking job.
I know in the great world of terrible diseases, this one is not so bad. It just sucks to have a chronic illness diagnosis at 14. And my bigger concern is her risk of related illnesses--so I want as much information as possible so that we can do whatever we need to prevent or minimize future problems.
Between this and other issues this week has been really shitty. I'm feeling like I must have really pissed off karma. I just want to crawl in bed and hide under my covers and wish all the bad stuff away. Unfortunately, that doesn't really work for grown-ups.